tag:blogger.com,1999:blog-8732590261022072879.post306846243320235587..comments2023-04-08T05:24:37.929-04:00Comments on Wife of Type 1 Diabetic: As a living kidney donor, how much do I need to worry about complications down the road?Unknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8732590261022072879.post-14412068981740336042011-01-31T04:26:48.587-05:002011-01-31T04:26:48.587-05:00Thanks (again) for the info! Happy that you took ...Thanks (again) for the info! Happy that you took it upon yourself to start the site for living donors, as there is very little out there for us information-wise.Lillyhttps://www.blogger.com/profile/00850646712565307929noreply@blogger.comtag:blogger.com,1999:blog-8732590261022072879.post-9946592602171738292011-01-30T21:03:38.228-05:002011-01-30T21:03:38.228-05:00The first lap surgery occurred in 1995 (I had to d...The first lap surgery occurred in 1995 (I had to dig through my vast folder of documents, don't ya know...) A 2003 study said there was a huge learning curve for surgeons using the hand-assisted lap procedure: <br /><br />"Steep learning curve translates into longer operative times and unacceptable high rate of<br />complications. Present new life-threatening complications that are usually NOT seen in the open approach. Awareness of their potential and knowledge of management prevent mortality and reduce morbidity—patient safety.<br /><br />The uncritical application of laparoscopy due to inexperience can lead to serious complications. The complications unique to laparoscopy include those related to creation of pneumoperitoneum, <b>patient positioning</b>, and surgical intervention." (emphasis mine)<br /><br />I wish I could say differently, but living donors are stil saddled with the responsibility of their own long-term care. It's a potential disaster really because most living donors only know what the transplant centers tell them (which often isn't much) and they trust that health care professionals know what's best for them. What a lot of us have found out the hard way is that many providers have NO idea what to do with living donors. The only thing that often stands in the way of detrimental treatment is our own knowledge and self-assertion.Cristy at Living Donor 101 dot comhttps://www.blogger.com/profile/11742254279306719874noreply@blogger.comtag:blogger.com,1999:blog-8732590261022072879.post-85312526969720937182011-01-30T20:08:58.252-05:002011-01-30T20:08:58.252-05:00I donated almost 9 years ago. Do you have any sta...I donated almost 9 years ago. Do you have any stats on how long ago open procedures were common? When I was finally released from the hospital, I was then left totally on my own to find the right health providers to help me. I have to wonder how much of my "complication" was even documented, as I think they were really worried I would sue.Lillyhttps://www.blogger.com/profile/00850646712565307929noreply@blogger.comtag:blogger.com,1999:blog-8732590261022072879.post-21106193850222773692011-01-30T19:57:04.882-05:002011-01-30T19:57:04.882-05:00Hey Lilly,
What you endured is unconscionable, a...Hey Lilly, <br /><br />What you endured is unconscionable, and you have my upmost sympathy. You mentioned the possibility of an open procedure, so I have to wonder how long ago you donated. I ask because I don't think most surgeons would even consider performing an open procedure on someone unless it was an emergency situation. This so-called advocate - am I to guess she wasn't a living donor herself? And isn't that always the way of things? <br /><br />Yeah, there's some scary stuff out there potentially lurking for living donors. The fortunate ones avoid the worst of it, but isn't the point that we deserve to know the possibilities? And more so, that the transplant program who caused the problem treats it?Cristy at Living Donor 101 dot comhttps://www.blogger.com/profile/11742254279306719874noreply@blogger.comtag:blogger.com,1999:blog-8732590261022072879.post-995730755379668262011-01-27T14:36:01.348-05:002011-01-27T14:36:01.348-05:00WOW...talk about a labor of love. I am blown away....WOW...talk about a labor of love. I am blown away. I know of two people who donated kidneys to loved ones and have yet to hear that they have had complications...I was in awe of them when I learned what they had done. <br /><br />I had a large kidney stone lithotripsied about 5-6 years ago and wonder what kind of damage that might have caused the kidney, if any.I know I would more than likely donate to my loved ones if they needed me to...and yet...I hear ya...scary stuff. HUGSLynn Barryhttps://www.blogger.com/profile/04837350761151318478noreply@blogger.com